June is Arthrogryposis Awareness Month!

Arthrogryposis (AMC) Awareness Day is June 30th

by Michael

Welcome to June and Arthrogryposis Multiplex Congenita (AMC) Awareness Month!

If you’ve been following the blog portion of this site or my other blog, The Greene Affect, you know my son was born with Arthrogryposis.

Arthrogryposis Multiplex Congenita (AMC) is a term used to describe a group of congenital conditions characterized by joint contractures in two or more body areas. The name is derived from Greek, translating to the “curving of joints”. Some common joint contractures include clubbed feet, extended or flexed knees, externally rotated and/or dislocated hips, internally rotated shoulder, adducted thumbs, and fingers fisted or extended.

We acknowledge AMC Awareness Day on June 30.

June 30, 2005, was the day that AMCSupport.org was launched. Ani Samargian, a mother to an AMCer, created the group because of how little information there was available because of AMC’s rarity. Two years after she launched the site, Arthrogryposis Multiplex Congenita Support, Inc., became an official non-profit.

While June 30th is acknowledged as AMC Awareness Day, Arthrogryposis Multiplex Congenita Support will bring awareness the entire month of June, by sharing AMC facts each day, sharing and posting about their AMC community, and encouraging everyone to wear blue on June 30th.

You can find some of the AMC facts that are sure to be shared in the coming days, including:

  • Arthrogryposis occurs in 1 in 3,000 live births
  • AMC is non-progressive, but the contractures can recur after treatment.
  • There is no cure for arthrogryposis.
  • There are over 400 types of arthrogryposis.

You can also show support for AMC Awareness on social media in multiple ways, including using the hashtag #BlueForAMC

You can also get a special AMCSI Profile Picture frame here.

For all 30 facts, along with more posts from the AMC community, tons of AMC information, and the chance to donate, be sure to follow AMCSI on your desired social media platform: FacebookInstagramTwitter.

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