June 30th is Arthrogryposis Awareness Day.
If you’ve been following the blog portion of the site you know my son was born with Arthrogryposis.
Arthrogryposis Multiplex Congenita (AMC) is a term used to describe a group of congenital conditions characterized by joint contractures in two or more body areas, and is derived from Greek, translating to the “curving of joints”.
AMC Awareness Day is acknowledged on June 30 because June 30, 2005, was the day that AMCSupport.org was launched. Ani Samargian, a mother to an AMCer created the group because of how little information there was available because of AMC’s rarity. Two years after she launched the site, Arthrogryposis Multiplex Congenita Support, Inc., became an official non-profit.
While June 30th is acknowledged as AMC Awareness Day, Arthrogryposis Multiplex Congenita Support has been bringing awareness the entire month of June, by sharing AMC facts each day, sharing and posting about their AMC community, and encouraging everyone to wear blue on June 30th.
You can find some of the AMC facts that have been shared below, including:
- Arthrogryposis occurs in 1 in 3,000 live births
- AMC is non-progressive but the contractures can recur after treatment.
- There is no cure for arthrogryposis.
- There are more than 400 types of arthrogryposis.
For all 30 facts, along with more posts from the AMC community, tons of AMC information, and the chance to donate, be sure to follow AMCSI on your desired social media platform: Facebook, Instagram, Twitter.
