Rare Disease Day 2025: When Rare is Your Everyday
Tomorrow, February 28th, 2025, is Rare Disease Day—a day that holds deep personal significance for my family. It’s a day to stand with millions worldwide,...
Category : Arthrogryposis
Blog and news articles related to arthrogryposis multiplex congenita
Rare Disease Day 2024: Raising Awareness, Building Hope
Millions worldwide face the daily challenges of rare diseases, often feeling forgotten and without adequate resources. Tomorrow, on February 29th, 2024, we stand together on...
The Next Step Forward with an Eye Gaze Device
As parents, we’re conditioned to expect and anticipate certain milestones from our children. We eagerly anticipate their first words, the sweet “mama” and “dada”. Those...
Looking Back on AMC Awareness Day 2023
Last year, I shared a post reflecting on AMC Awareness Day and comparing it to our first AMC Awareness Day. I had planned to do...
June is Arthrogryposis Awareness Month
Greetings and welcome to June, which marks Arthrogryposis Multiplex Congenita (AMC) Awareness Month! If you’ve been following the blog section of this website or my...
Looking Back on AMC Awareness Day 2022
It has been 2 months since our second AMC Awareness Day, and it is a curious thinning looking back on it. Another emotional day for...
June 1st Starts Arthrogryposis Awareness Month!
Welcome to June and Arthrogryposis Multiplex Congenita (AMC) Awareness Month! If you’ve been following the blog portion of this site or my other blog, The Greene Affect,...
Microsoft Announces new Adaptive Accessories for Disabled Users
Microsoft has announced a new lineup of adaptive accessories, allowing for modern technologies to be more inclusive for disabled users. Microsoft’s new lineup, designed by...
A List for New Arthrogryposis Parents
Last week our son turned 1. This means I’ve been an arthrogryposis dad, and we have been arthrogryposis parents for a year now. I’m not...
Rare Disease Day – 2022
Today is Rare Disease Day. Observed yearly, on the last day of February. To help raise awareness for rare diseases and to improve access to...